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17q12 Foundation

17q12 Foundation - 501(c)3

Hikers: 1  

Sponsors: 18  

Pledged: $4125.60  

Hiked: $1069.60  

Donated: $3290.00

In July of 2017, families had the opportunity to meet at a medical conference for 17q12 syndromes in Chicago, IL. It was there that a group of people, all interested in 17q12, came together to become an official non-profit organization. 17q12 Foundation's board consists of four parents and a genetic counselor; all who are volunteering their time. We represent individuals and families with either chromosome 17q12 microdeletion syndrome or microduplication syndrome. Our goal is to provide support, begin a registry to gain an accurate number of individuals affected, fund much-needed research, and to create awareness and understanding. visit site

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