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17q12 Foundation

17q12 Foundation - 501(c)3

Hikers: 1  

Sponsors: 3  

Pledged: $1135.35  

Hiked: $0.00  

Donated: $0.00

In July of 2017, families had the opportunity to meet at a medical conference for 17q12 syndromes in Chicago, IL. It was there that a group of people, all interested in 17q12, came together to become an official non-profit organization. 17q12 Foundation's board consists of four parents and a genetic counselor; all who are volunteering their time. We represent individuals and families with either chromosome 17q12 microdeletion syndrome or microduplication syndrome. Our goal is to provide support, begin a registry to gain an accurate number of individuals affected, fund much-needed research, and to create awareness and understanding. visit site

2018 hikers for c17q12

JD

Josh Niedermeier

Hiking 135 miles for c17q12
on the Low to High
Pre-hike 3 sponsors
$8.41 per mile
up to $1135.35
0 miles hiked
$0.00 hiked
$0.00 donated