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17q12 Foundation

17q12 Foundation - 501(c)3

Hikers: 1  

Sponsors: 18  

Pledged: $4125.60  

Hiked: $1069.60  

Donated: $3290.00

In July of 2017, families had the opportunity to meet at a medical conference for 17q12 syndromes in Chicago, IL. It was there that a group of people, all interested in 17q12, came together to become an official non-profit organization. 17q12 Foundation's board consists of four parents and a genetic counselor; all who are volunteering their time. We represent individuals and families with either chromosome 17q12 microdeletion syndrome or microduplication syndrome. Our goal is to provide support, begin a registry to gain an accurate number of individuals affected, fund much-needed research, and to create awareness and understanding. visit site

2018 hikers for c17q12

JD

Josh Niedermeier

Hiking 135 miles for c17q12
on the Low to High
Done hiking 18 sponsors
$30.56 per mile
up to $4125.60
35 miles hiked
$1069.60 hiked
$3290.00 donated